It all started when he was a year old. He slashed his hands with a sharp knife by accident and his mom tried doing everything she could but the bleeding didn’t stop. He was taken to a hospital nearby and that was the first time of many more that he was admitted in the ICU. Upon analysis, his parents were told that he was facing a rare genetic disorder. Haemophilia. That’s the first word he learnt in English. And the first definition “Haemophilia is a blood disorder where an essential clotting factor is missing, either partly or completely”. After that day, everyday of his life has been eventful and everything he did was monitored by his poor parents, literally.
He never had the freedom to do things the way other kids did them, he was always under supervision. Why should one word gulp up my whole life?, he often used to wonder. But over time, he had to accept it. His parents told him that he was special and one in million who get this dreadful deficiency. But he didn’t want to be special. He wanted to be normal. He didn’t like the way people treated him. He hated being shown pity. He was not going to let anyone think he was a patient. He wanted to fight. He wanted to show to this world which does nothing but show pity that he was capable of great things. He was going to leave an inedible mark…
He underwent all the known methods of treatment. From the painful injections time to time, the various exercises, the different herbs suggested, to the acts of self-hypnotism, he tried everything. It made no difference to anything. He wasn’t allowed to shave his ugly beard also. What if you get hurt?, he was asked. But I want to shave and look smart!, he cried to himself. He decided he would do something about this. He joined biology course in his higher secondary. And it was then that he felt his life was meaningful. He started believing that it was no fault of his that he is facing this deficiency. He did his under-graduate in Biotechnology. Soon he got tired of all the theory he was reading. He started a local laboratory on his own, with full support from his parents. He knew that they can’t support him forever, that he needed to earn money on his own now. He started working for a newspaper company to earn his living. He worked hard in his lab late nights to develop something that would save his peers all over the world. He knew it was far fetched. But he wanted to die fighting…
Today was that fateful day when his hand got jammed into the printing machine and he was bleeding. Oh shit! Wish I had completed the experiment yesterday! He had developed something but he couldn’t test unless he had medical support in case it failed. He waited for Sunday to test it as it would be an off day for work. He ran hard with blood flowing all over his body. His parents were shocked to see him coming back to home liked that. But he had no time to explain it to them. Unmindful of them, he ran straight to his lab. He had five more minutes. He mixed the final two solutions and drank the resulting liquid as fast as he could. And that was the last thing he remembered…
A week later:
The local newspaper company had lost one of its employees this week. He was hardworking, the boss was thinking. There was a new boy now replacing the dedicated employee. The new boy was looking at the headlines.
A SCIENTIFIC MIRACLE!!
A young scientist from India has miraculously discovered the cure to a long known genetic disorder……
He was reading the same headline. He has suddenly become world famous. And once in the limelight, money comes uninvited. He returned to his lab to start work again. To develop a cheap, affordable cure for the same…
Note: This post is dedicated to all the people who face similar disorders and to that special person whom I have come across having the disorder discussed above.
7 comments:
His parents told him that he was special and one in million who get this dreadful deficiency.
special negative/positive meaning?
@sandhya: positive! parents were giving him the motivation that he should know that nothing else can stop him as he has overcome the disorder in the first place!!
he should feel confident of facing anything and everything!
thats what i meant by that line. hope it isnt misleading..
thanks :)
ur stories are gettin better by the day... keep writin stories
people with these disorders can do much more than just hope.. nice one :)
@mathangi: sure.. will try to write more of those! :) will write as and when i can think of something. keep visiting!
@vinod: rightly put da.. just an inspiration for all those who read this :)
Inspirational!! Hard to find ppl like ur protagonist though, we do need more of that kind. Nice one!:)
@sementi: i feel there are many out there already doing their best, combating social issues.. just that their scale of action is limited to some area.. or they wish to remain anonymous.. thanks :)
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